because we care
exploring care and well-being with siblings of children with life-limiting conditions through philosophical inquiry
DOI :
https://doi.org/10.12957/childphilo.2026.94817Mots-clés :
well-being, care, siblings, life-limiting conditions, philosophical inquiryRésumé
Ces dernières années, l'expérience des frères et sœurs d'enfants atteints de maladies limitant l'espérance de vie a suscité une attention croissante. Cependant, leur conception du bien-être et des soins a reçu une attention limitée. Cet article présente les conclusions d'un projet mené auprès d'un petit groupe d'enfants dont les frères et sœurs sont atteints de maladies limitant l'espérance de vie. De manière originale, les frères et sœurs ont exploré les concepts de soins et de bien-être à travers une série de dialogues philosophiques et d'activités artistiques complémentaires. Quatre thèmes principaux ont été au cœur de leur réflexion sur les soins et le bien-être : être soi-même, la vie est un tourbillon d'émotions, l'amour est complexe et l'union fait la force. Le message clé qui a guidé leur compréhension des soins et du bien-être est que l'amour est le moteur d'un comportement bienveillant et que nous devons prendre soin des autres, non pas parce qu'ils ont des besoins particuliers, mais parce que nous sommes humains. Comprendre comment les frères et sœurs d’enfants atteints de maladies limitant l’espérance de vie perçoivent les notions de soins et de bien-être permet de garantir que ce groupe sous-représenté est entendu et qu’en s’occupant d’eux, les familles et les autres personnes qui prennent soin d’eux sont mieux à même de répondre à leurs besoins en vue de leur permettre de bien vivre.
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© claire cassidy, cillian dwyer, lorna fraser, anna robinson 2026
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