because we care
exploring care and well-being with siblings of children with life-limiting conditions through philosophical inquiry
DOI:
https://doi.org/10.12957/childphilo.2026.94817Palavras-chave:
bem-estar, cuidado, irmãos, doenças terminais, investigação filosóficaResumo
As experiências dos irmãos de crianças com doenças terminais têm recebido uma atenção cada vez maior nos últimos anos. No entanto, a conceitualização de bem-estar e cuidado tem recebido atenção limitada. Esse artigo apresenta os resultados de um projeto desenvolvido com um pequeno grupo de crianças que têm irmãos com doenças terminais. De forma singular, os irmãos exploraram os conceitos de cuidado e bem-estar através de uma série de diálogos filosóficos e atividades artísticas complementares. Quatro temas principais fundamentaram o modo como os irmãos pensaram sobre cuidado e bem-estar: ser você mesmo, a vida é uma montanha russa emocional, o amor é complexo e juntos somos mais fortes. A mensagem principal dos irmãos sobre o cuidado e o bem-estar é que o amor estimula comportamentos solidários e que devemos cuidar uns dos outros, não porque tenham necessidades específicas, mas porque somos seres humanos. Compreender como os irmãos de crianças com doenças terminais pensam sobre cuidado e bem-estar garante que esse grupo sub-representado seja ouvido e que, ao atendê-los, as famílias e outras pessoas que cuidam e se preocupam com eles possam melhor satisfazer suas necessidades, de modo que vivam bem.
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Copyright (c) 2026 claire cassidy, cillian dwyer, lorna fraser, anna robinson
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