because we care
exploring care and well-being with siblings of children with life-limiting conditions through philosophical inquiry
DOI:
https://doi.org/10.12957/childphilo.2026.94817Palabras clave:
bienestar, cuidado, hermanos y hermanas, enfermedades terminales, pregunta filosóficaResumen
En los últimos años, las experiencias de los hermanos y hermanas de niños y niñas con enfermedades terminales han recibido una atención cada vez mayor. Sin embargo, su concepción del bienestar y el cuidado ha sido objeto de interés limitado. Este artículo presenta los resultados de un proyecto llevado a cabo con un pequeño grupo de niños y niñas que tienen hermanos y hermanas con enfermedades terminales. De forma singular, los hermanos y hermanas exploraron los conceptos de cuidado y bienestar a través de una serie de diálogos filosóficos y actividades artísticas complementarias. Cuatro temas principales fueron fundamentales en la forma de pensar de los hermanos y hermanas sobre el cuidado y el bienestar: ser uno mismo, la vida es una montaña rusa emocional, el amor es complejo y juntos somos más fuertes. El mensaje clave de los hermanos y heramnas sobre el cuidado y el bienestar, es que el amor impulsa el comportamiento solidario, y que debemos cuidar de los demás, no porque tengan necesidades particulares, sino porque somos humanos. Comprender cómo piensan los hermanos y hermanas de niños y niñas con enfermedades terminales sobre los conceptos de cuidado y bienestar garantiza que se escuche a este grupo infrarrepresentado y que, al atenderlos, las familias y otras personas que los cuidan y se preocupan por ellos puedan satisfacer mejor sus necesidades con el fin de que vivan bien.
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Derechos de autor 2026 claire cassidy, cillian dwyer, lorna fraser, anna robinson
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