Intervening factors in the management of nursing care for children hospitalized with rheumatic heart disease
DOI:
https://doi.org/10.12957/reuerj.2024.81243Keywords:
Pediatric Nursing, Child, Hospitalized, Rheumatic Heart Disease, Patient Care PlanningAbstract
Objective: to analyze the factors involved in the management of nursing care for children hospitalized with rheumatic heart disease. Method: this is a descriptive-exploratory study with a qualitative approach, which used Data-Based Theory and Symbolic Interactionism, respectively, as methodological, and theoretical references. Data was collected in an institution specializing in cardiac care in the city of Rio de Janeiro. Nineteen nursing professionals were interviewed using a semi-structured script. Result: the following intervening factors in the practice of care management emerged: the family's socioeconomic status, the child's behavior, working conditions, ineffective communication, continuing education, teamwork, and professional experience. Conclusion: the results point to the need to propose strategies for action and interaction that facilitate management practice in caring for children with rheumatic heart disease and their families, given the intervening factors identified.
References
Dass C, K Arun. Rheumatic heart disease. StatPearls. 2023 [cited 2023 Dec 14]. Available from: https://www.ncbi.nlm.nih.gov/books/NBK538286/.
Peters F, Karthikeyan G, Abrams J, Muhwava L, Zühlke L. Rheumatic heart disease: current status of diagnosis and therapy. Cardiovasc Diagn Ther. 2020 [cited 2023 Dec 14]; 10(2):305–15. DOI: https://doi.org/10.21037/cdt.2019.10.07.
Figueiredo ET, Azevedo L, Rezende ML, Alves CG. Rheumatic fever: a disease without color. Arq. Bras. Cardiol. 2019 [cited 2023 Dec 14]; 113(3):345–54. DOI: https://doi.org/10.5935/abc.20190141.
Pop-Jordanova N. Chronic diseases in children as a challenge for parenting. Pril. 2023 [cited 2023 Dec 14]; 44(1):27–36. DOI: https://doi.org/10.2478/prilozi-2023-0004.
Passone CGB, Grisi SJ, Farhat SC, Manna TD, Pastorino AC, Alveno RA, et al. Complexity of pediatric chronic disease: Cross-sectional study with 16,237 patients followed by multiple medical specialties. Rev Paul Pediatr. 2020 [cited 2023 Dec 14]; 38(esp):e2018101. DOI: https://doi.org/10.1590/1984-0462/2020/38/2018101.
Barros ACL, Menegaz JC, Santos JLG, Polaro SHI, Trindade LL, Meschial WC. Nursing care management concepts: scoping review. Rev Bras Enferm. 2023 [cited 2023 Dec 14]; 76(esp):e20220020. DOI: https://doi.org/10.1590/0034-7167-2022-0020pt.
Silva TP, Silva LJ, Rodrigues BMRD, Silva ÍR, Chistoffel MM, Leite JL. Care management for the hospitalized child with chronic cancer pain: intervening conditions. Rev. Bras. Enferm. 2019 [cited 2023 Dec 14]; 72(1):181–8. DOI: http://dx.doi.org/10.1590/0034-7167-2017-0514.
Arvind B, Ramakrishnan S. Rheumatic fever and rheumatic heart disease in children. Indian J Pediatr. 2020 [cited 2023 Dec 14]; 87(4):305–11. DOI: https://doi.org/10.1007/s12098-019-03128-7.
Bimerew M, Beletew B, Getie A, Wondmieneh A, Gedefaw G, Demis A. Prevalence of rheumatic heart disease among school children in East Africa: a systematic review and meta-analysis. Pan Afr Med J. 2021 [cited 2023 Dec 14];38(242). DOI: https://doi.org/10.11604/pamj.2021.38.242.26058.
Lilyasari O, Prakoso R, Kurniawati Y, Roebiono PS, Rahajoe AU, Sakidjan I, et al. Clinical profile and management of rheumatic heart disease in children and young adults at a tertiary cardiac center in Indonesia. Front Surg. 2020 [cited 2023 Dec 14]; 7:47. DOI: https://doi.org/10.3389/fsurg.2020.00047.
Lindholm DE, Whiteman IJ, Oliver J, Cheung MMH, Hope SA, Brizard CP, et al. Acute rheumatic fever and rheumatic heart disease in children and adolescents in Victoria, Australia. J Paediatr Child Health. 2022 [cited 2023 Dec 14]; 59(2):352–9. DOI: https://doi.org/10.1111/jpc.16305.
Blumer H. Symbolic Interactionism: Perspective and Method. Berkeley: University of California Press; 1986.
Corbin J, Strauss A. Basics of Qualitative Research: Techniques and Procedures for Developing Grounded Theory. 4th ed. Los Angeles: Sage; 2015.
Franco LF, Bonelli MA, Wernet M, Barbieri MC, Dupas G. Patient safety: perception of family members of hospitalized children. Rev. Bras. Enferm. 2020 [cited 2023 Dec 14]; 73(5):e20190525. DOI: http://dx.doi.org/10.1590/0034-7167-2019-0525.
Sousa MST, Correia MJPL, Nunes EMGT. Family perception of safety in hospital care for the pediatric patient: scoping review. Pensar Enf. 2024 [cited 2024 Apr. 16]; 28(1):14-25. Available from: https://pensarenfermagem.esel.pt/index.php/esel/article/view/298.
Mitchell AG, Diddo J, James AD, Guraylayla L, Jinmarabynana C, Carter A, et al. Using community‐led development to build health communication about rheumatic heart disease in Aboriginal children: a developmental evaluation. Aust N Z J Public Health. 2021 [cited 2023 Dec 14]; 45(3):212–9. DOI: https://doi.org/10.1111/1753-6405.13100.
Rocha LS, Nunes MDR, Macedo IF, Fassarella LG, Pacheco STA, Evangelista TAR. Family view on the shared care of hospitalized children with chronic condition. Rev. baiana enferm. 2022 [cited 2023 Dec 14]; 36(esp):e48351. DOI: https://doi.org/10.18471/rbe.v36.48351.
Rodrigues JIB, Fernandes SMGC, Marques GFS. Concerns and needs of parents of hospitalized children. Saúde Soc. 2020 [cited 2023 Dec 14]; 29(2):e190395. DOI: https://doi.org/10.1590/S0104-12902020190395.
Fernandes BCG, Silva Júnior JNB, Guedes HCS, Macedo DBG, Nogueira MF, Barrêto AJR. Use of technologies by nurses in the management of primary health care. Rev Gaucha Enferm. 2021 [cited 2023 Dec 14]; 42(esp):e20200197. DOI: https://doi.org/10.1590/1983-1447.2021.20200197.
Gasparino RC, Ferreira TDM, Oliveira HC, Alves DFS, Balsanelli AP. Leadership, adequate staffing and material resources, and collegial nurse–physician relationships promote better patients, professionals and institutions outcomes. J Adv Nurs. 2021 [cited 2023 Dec 14]; 77(6):2739-47. DOI: https://doi.org/10.1111/jan.14805.
Sable C, Li JS, Tristani-Firouzi M, Fagerlin A, Silver RM, Yandel M, et al. American Heart Association’s children’s strategically focused research network experience. Am Heart Assoc. 2023 [cited 2023 Dec 14]; 12(7):e028356. DOI: https://doi.org/10.1161/jaha.122.028356.
Bhatt N, Karki A, Shrestha B, Singh A, Rawal LB, Sharma SK. Effectiveness of an educational intervention in improving healthcare workers’ knowledge of early recognition, diagnosis and management of rheumatic fever and rheumatic heart disease in rural far-western Nepal: a pre/post-intervention study. BMJ Open. 2022 [cited 2023 Dec 14]; 12(4):e059942. DOI: https://doi.org/10.1136/bmjopen-2021-059942.
Published
How to Cite
Issue
Section
License
Copyright (c) 2024 Giovana de Oliveira Monteiro Queiroz, Italo Rodolfo Silva, Ana Paula Prata, Laura Johanson da Silva, Sabrina Costa Machado Duarte, Thiago Privado da Silva
This work is licensed under a Creative Commons Attribution 4.0 International License.
When publishing in Revista Enfermagem UERJ, the authors declare that the work is their exclusive authorship and therefore assume full responsibility for its content.
Authors retain copyright to their article and agree to license their work using a Creative Commons Attribution International Public License (CC BY), thereby accepting the terms and conditions of this license (https://creativecommons.org/licenses/by/4.0/legalcode.en), which allows material created by the author to be distributed, copied and displayed by third parties. The original work must be cited and present a link to the article available on the website of the journal in which it was published.
The Copyright of the articles published in Revista Enfermagem UERJ belongs to their respective author(s), with the rights of first publication assigned to Revista Enfermagem UERJ, with the work simultaneously licensed under a Creative Commons License CC BY, which allows sharing of work with recognition of authorship and initial publication in this journal.
The authors grant Revista Enfermagem UERJ the right of first publication, to identify themselves as the original publisher of the work and grant the magazine a license of non-exclusive rights to use the work in the following ways:
- Sell and/or distribute the work in printed copies and/or electronic format;
- Distribute parts and/or the work as a whole with the aim of promoting the magazine through the internet and other digital and printed media;
- Record and playback work in any format, including digital media.
In line with the journal's policies, each published article will be assigned a Creative Commons Attribution (CC BY) license.
