QUALITY OF LIFE OF CHILDREN AND ADOLESCENTS WITH CYSTIC FIBROSIS: THE IMPORTANCE OF BODY IMAGE AND THE IMPACT OF NUTRITIONAL STATUS, AGE AND RACE/SKIN COLOR ON PATIENTS’ AND CAREGIVERS’ PERCEPTIONS
DOI:
https://doi.org/10.12957/demetra.2018.32295Keywords:
Cystic fibrosis. Body image. Nutrition assessment. Body mass index. Quality of life. Malnutrition.Abstract
Objective: To identify factors related to the quality of life of children and adolescents with cystic fibrosis. Methods: Cross-sectional study of patients with cystic fibrosis, aged 7-18 years, from a Pediatric Referral Center in Brazil. The Cystic Fibrosis Questionnaire was used to evaluate the quality of life. The Mann-Whitney Test and the Spearman Correlation Test were used for the statistical analysis. The significance level adopted was 5%. Results: The domains with the lowest averages were body image (64.3±29.6) and weight (47.6±42.4), in the patient’s perception. In the parents’ perception, weight also presented the lowest average (52.8±43.7). The treatment domain had greater impact on the quality of life of patients aged 14 years (p=0.012) and older, and eating had greater impact among children younger than 14 years (p=0.04). The white individuals had better scores than the black/brown individuals in the body image domain (p=0.049). A moderate positive correlation was found between pBMI/A and the respiratory domain and a strong positive correlation between pBMI/A and body image. Conclusions: The correlation between pBMI/A and body image suggests that low weight negatively affects body image, which deserves attention, since body image and weight were the domains with the lowest scores in the patient’s perception, and weight also had the lowest score in the perception of those responsible for the patients. In addition, low weight increased the impact of respiratory symptoms on the quality of life. The impact of treatments was greater in older patients, while the impact of eating was greater in younger patients. Race/skin color had an impact on the body image domain.
DOI: 10.12957/demetra.2018.32295
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