Changes in the daily life of people with psoriasis [Alterações no cotidiano de pessoas acometidas por psoríase] [Alteraciones en el cotidiano de personas afectadas por psoriasis]
DOI:
https://doi.org/10.12957/reuerj.2018.28332Keywords:
Psoriasis, quality of life, psychological adaptation, community health nursing.Abstract
Objectives: to identify perceptions of psoriasis and changes in daily life among people with the disease, and to discuss these in order to contribute to coping. Method: in this qualitative study, data were collected by individual interview, applying a semi-structured script to 25 patients of both sexes receiving care at an outpatient dermatology clinic in Belém, Pará, and were treated by thematic content analysis. The project had research ethics committee approval. Results: the themes identified, showing that psoriasis has implications in several dimensions of patients’ lives, were organized into two categories: The meaning of psoriasis and Psoriasis and its implications. Conclusion: the day-to-day repercussions go beyond biological consequences, requiring reorganization of routine activities and personal and social adaptation, and thus entailing a more comprehensive, multi-professional, bio-psycho-social approach to coping.
RESUMO
Objetivos: identificar a percepção das pessoas acometidas sobre a psoríase e as alterações no cotidiano; discutir esses aspectos para contribuir no seu enfrentamento. Método: pesquisa qualitativa, cujos dados foram coletados em entrevistas individuais por meio de roteiro semiestruturado, aplicado a 25 pacientes de ambos os sexos, atendidos em um ambulatório de dermatologia em Belém – Pará e tratados por meio da análise de conteúdo temática. O projeto foi aprovado em Comitê de Ética em Pesquisa. Resultados: os temas identificados mostraram que a psoríase causa implicações em diversas dimensões da vida do paciente, e esses temas foram organizados em duas categorias: o significado da psoríase e a psoríase e suas implicações. Conclusão: as repercussões causadas no cotidiano vão além das consequências biológicas, exigindo a reorganização de atividades rotineiras e readaptação pessoal e social; evidencia-se que, para seu enfrentamento, há necessidade de abordagem biopsicossocial e multiprofissional de forma mais abrangente.
RESUMEN
Objetivos: iidentificar la percepción de las personas afectadas sobre la psoriasis y las alteraciones en su cotidiano; discutir estos aspectos para contribuir en su enfrentamiento. Método: investigación cualitativa, cuyos datos fueron recolectados en entrevistas individuales a través de un guion semiestructurado, aplicado a 25 pacientes de ambos sexos, atendidos en un ambulatorio de dermatología en Belém - Pará y tratados por medio del análisis de contenido temático. El proyecto fue aprobado en Comité de Ética en Investigación. Resultados: los temas identificados mostraron que la psoriasis causa implicaciones en diversas dimensiones de la vida del paciente y se organizaron estos temas en dos categorías: el significado de la psoriasis y la psoriasis y sus implicaciones. Conclusión: las repercusiones causadas en el cotidiano van más allá de las consecuencias biológicas, exigiendo la reorganización de actividades rutinarias y readaptación personal y social, evidenciando que, para su enfrentamiento, es necesario un enfoque biopsicosocial y multiprofesional de forma más amplia.
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