Meaning of the health-disease process in the perception of children undergoing hospitalized cancer treatment
DOI:
https://doi.org/10.12957/reuerj.2025.86392Keywords:
Nursing, Medical Oncology, Pediatrics, Health-Disease ProcessAbstract
Objective: to understand the perception of pediatric patients undergoing cancer treatment and hospitalized regarding the health-disease process. Method: participatory qualitative study based on art, using creativity and sensitivity techniques Free to Create and Photovoice, carried out with ten children aged between seven and twelve years old, hospitalized in the pediatric oncology ward of a university hospital in the state of Rio Grande do Sul. Data generation took place from May to August 2023. For data analysis and interpretation, Minayo’s thematic analysis framework was used. Results: it is possible to associate children’s perception of the health-disease process with the lack of daily routine, social isolation, and also painful procedures. Final considerations: it is necessary to give children voice and space to express their perceptions and feelings while experiencing illness, treatment, and the hospital environment. Thus, it is expected to provoke reflections among the healthcare team to expand and improve the quality of care in pediatric oncology.
References
1. Faria FG, Siqueira Batista R. Perspectives on the health care of homeless people. Rev Bras Med Fam Comunidade. 2022 [cited 2024 Aug 7]; 17(44):2548. DOI: https://doi.org/10.5712/rbmfc17(44)2548.
2. Quiroga FL, Paolucci BA. Educação física como estratégia biopolítica da ideologia higienista e seus vínculos epistemológicos com as teorias do processo saúde-doença. Rco. 2023 [cited 2024 Aug 7]; 2:365-78. DOI: https://doi.org/10.25112/rco.v2.3052.
3. Souza AIJ, et al. (orgs.). Atenção integral à saúde da criança: medicina. 2. ed. Florianópolis: Universidade Federal de Santa Catarina; 2016.
4. Ferreira EDS, Pessoa ACRG. Hospital pedagogical support to children with câncer in the literacy process. Educ rev. 2023 [cited 2024 Aug 7]; 39:e37031. DOI: https://doi.org/10.1590/0102-469837031.
5. Instituto Nacional de Câncer (Br). Câncer infantojuvenil. Rio de Janeiro (RJ): Instituto Nacional de Câncer; 2022 [cited 2024 Aug 7]. Available from: https://www.gov.br/inca/pt-br/assuntos/cancer/tipos/infantojuvenil.
6. Instituto Nacional do Câncer (Br). Estimativa 2023: incidência de câncer no Brasil. Rio de Janeiro (RJ): Instituto Nacional de Câncer; 2023 [cited 2024 Aug 7]. Available from: https://www.inca.gov.br/sites/ufu.sti.inca.local/files/media/document/estimativa-2023.pdf.
7. Lima RAG, Scochi CGS, Kamada I, Rocha SMM. Assistência à criança com câncer: análise do processo de trabalho. Rev esc enfermagem USP. 1996 [cited 2024 Aug 7]; 30(1):14-24. DOI: https://doi.org/10.1590/S0080-62341996000100002.
8. Soratto J, Pires DEP de, Cabral IE, Lazzari DD, Witt RR, Sipriano CA de S. A maneira criativa e sensível de pesquisar. Rev Bras Enferm. 2014 [cited 2024 Aug 7]; 67(6):994-9. DOI: https://doi.org/10.1590/0034-7167.2014670619.
9. Kinalski DDF, Antunes BS, Motta M da GC da. Children and adolescents living with HIV: participatory health care proposal. Rev Gaúcha Enferm. 2023 [cited 2024 Aug 7]; 44:e20220190. DOI: https://doi.org/10.1590/1983-1447.2023.20220190.en.
10. Leal CCG, Gomes-Sponholz FA, Mamede FV, Silva MAI, Oliveira NTB, Leite AM. Photovoice: method experiment research with adolescent mothers. Esc Anna Nery. 2018 [cited 2024 Aug 7]; 22(3):e20170322. DOI: https://doi.org/10.1590/2177-9465-EAN-2017-0322.
11. Falqueto JMZ, Hoffmann VE, Farias JS. Saturação teórica em pesquisas qualitativas: relato de uma experiência de aplicação em estudo na área de administração. RCA - on-line. 2018 [cited 2024 Aug 7]; 20(52):40-53. DOI: https://doi.org/10.5007/2175-8077.2018V20n52p40.
12. Minayo MCS. O desafio do Conhecimento: pesquisa qualitativa em saúde. 14. ed. São Paulo: Hucitec; 2014.
13. Souza VR, Marziale MH, Silva GT, Nascimento PL. Translation and validation Brazilian Portuguese and assessment of the COREQ checklist. Acta Paul Enferm. 2021 [cited 2024 Aug 7]; 34:eAPE02631. DOI: http://dx.doi.org/10.37689/acta-ape/2021ao02631.
14. Brasil. Resolução n.o 466, de 12 de dezembro de 2012. Brasília (DF): Conselho Nacional de Saúde; 2012 [cited 2023 Dec 23]. Available from: http://www.conselho.saude.gov.br/web_comissoes/conep/index.html.
15. Alves G da S, Viana JA, Souza MFS. Psico-oncologia: uma aliada no tratamento de câncer. Rev. Pret. 2018 [cited 2023 Dec 16]; 3(5):520-37. Available from: https://periodicos.pucminas.br/index.php/pretextos/article/view/15992.
16. Beltrão GGB, Aguiar JVS, Silva AM. Relação saúde-doença a partir das experiências de vida das crianças. Revista Exitus. 2021 [cited 2024 Aug 7]; 11:e020148-8. DOI: https://doi.org/10.24065/2237-9460.2021v11n1id1560.
17. Lopes NCB, Viana ACG, Félix ZC, Santana JS, Lima PT, Cabral ALM. Playful approaches and coping with childhood cancer treatment. Rev enferm UERJ. 2020 [cited 2024 Aug 7]; 28:e53040. DOI: http://dx.doi.org/10.12957/reuerj.2020.53040.
18. Costa TS, Morais AC. Child hospitalization: child living from graphical representations. Rev Enferm UFPE on line. 2017 [cited 2024 Aug 7]; 11(1):358-67. Available from: https://periodicos.ufpe.br/revistas/revistaenfermagem/article/view/11916/14406.
19. GabatzI RIB, Marten VM, Bório TC, Specht AL, Bazzan JS, Motta MGC. Difficulties and facilitating interactions in chronic health conditions: perceptions of children and adolescents. Rev Atenção Saúde. 2021 [cited 2024 Aug 7]; 19(70):73-186. Available from: https://seer.uscs.edu.br/index.php/revista_ciencias_saude/article/download/8086/3603.
20. Farias D, BärtschiGabatz RI, Milbrath VM, Schwartz E, Freitag VL. Child perception about the need for hospitalization to reestablish health. Rev. Enferm. Atual In Derme. 2019 [cited 2024 Aug 7]; 87(25):1-8. Available from: https://www.revistaenfermagematual.com.br/index.php/revista/article/download/186/347/1166.
21. Chakhssi F, Kraiss JT, Sommers-Spijkerman M, Bohlmeijer ET. The effect of positive psychology interventions on well-being and distress in clinical samples with psychiatric or somatic disorders: a systematic review and meta-analysis. BMC Psychiatry. 2018 [cited 2024 Aug 7]; 18(1):211. DOI: https://doi.org/10.1186/s12888-018-1739-2.
22. Gomes IP, Lima KA, Rodrigues LV, Lima RAG, Collet N. From diagnosis to survival of pediatric cancer: children’s perspective. Texto contexto – enferm. 2013 [cited 2024 Aug 7]; 22(3):671-9. DOI: https://doi.org/10.1590/S0104-07072013000300013.
23. Marcon SS, Lino IGT, Paschoalotto IG, Marquete VF, Batista VC, Ichisato SMT. Mudanças ocorridas após diagnóstico e tratamento do câncer na perspectiva da criança. Rev. Soc. Bras. Enferm. Ped. 2020 [cited 2024 Aug 7]; 20(1):22-30. DOI: https://doi.org/10.31508/1676-3793202000004.
24. Roganovic J. Late effects of the treatment of childhood cancer. World J Clin Cases. 2025 Mar 6;13(7):98000. DOI: https://doi.org/10.12998/wjcc.v13.i7.98000.
25. Teibel ENH, Andrade, DBSF. Contação de história e brincadeiras no hospital: significações e vivências de crianças acerca do cuidado em saúde. Humanidades & Inovação. 2022 [cited 2023 Dec 16]; 8(68). Available from: https://revista.unitins.br/index.php/humanidadeseinovacao/article/view/7037.
26. Emidio SCD, Morais RJL, Oliveira PNM, Bezerra RS. The viewpoint of hospitalized children with regards to oncological treatment. Rev Fun Care Online. 2018 [cited 2024 Aug 7]; 10(4):1141-9. DOI: http://dx.doi.org/10.9789/2175-5361.2018.v10i4.1141-1149.
27. Perosa GB, Padovani FHP, Lopes GC. Children with cancer’s understanding of illness and chemotherapy. Interface (Botucatu). 2023 [cited 2024 Aug 7]; 27:e230028. DOI: https://doi.org/10.1590/interface.230028.
28. Mendes MVC, Góes ACF, Brain, FRM. Children and adolescents in cancer treatment: an analysis of the vision of postponing the beginning or interruption of school education. Rev Bras Cancerol. 2018 [cited 2024 Aug 7]; 64(3):301-9. DOI: https://doi.org/10.32635/2176-9745.RBC.2018v64n3.27.
29. Merleau-Ponty M. Fenomenologia da percepção. 5. ed. São Paulo: Editora WMF Martins Fontes; 2018.
30. Santos HCC, Nacarato AM. Narratives of children of the 1st year of elementary school about skin color. Rev. Educ. PUC-Camp. 2022 [cited 2024 Aug 7]; 27:1-14. DOI: https://doi.org/10.24220/2318-0870v27e2022a5384.
Published
How to Cite
Issue
Section
License
Copyright (c) 2025 Camila Neves da Silva, Miriam Neis, Maria da Graça Corso da Motta

This work is licensed under a Creative Commons Attribution 4.0 International License.
When publishing in Revista Enfermagem UERJ, the authors declare that the work is their exclusive authorship and therefore assume full responsibility for its content.
Authors retain copyright to their article and agree to license their work using a Creative Commons Attribution International Public License (CC BY), thereby accepting the terms and conditions of this license (https://creativecommons.org/licenses/by/4.0/legalcode.en), which allows material created by the author to be distributed, copied and displayed by third parties. The original work must be cited and present a link to the article available on the website of the journal in which it was published.
The Copyright of the articles published in Revista Enfermagem UERJ belongs to their respective author(s), with the rights of first publication assigned to Revista Enfermagem UERJ, with the work simultaneously licensed under a Creative Commons License CC BY, which allows sharing of work with recognition of authorship and initial publication in this journal.
The authors grant Revista Enfermagem UERJ the right of first publication, to identify themselves as the original publisher of the work and grant the magazine a license of non-exclusive rights to use the work in the following ways:
- Sell and/or distribute the work in printed copies and/or electronic format;
- Distribute parts and/or the work as a whole with the aim of promoting the magazine through the internet and other digital and printed media;
- Record and playback work in any format, including digital media.
In line with the journal's policies, each published article will be assigned a Creative Commons Attribution (CC BY) license.



