Home care challenges facing families of children using a tracheostomy cannula [Desafios de familiares no cuidado domiciliar da criança em uso de cânula de traqueostomia] [Desafíos de familiares en el cuidado domiciliario al niño en uso de cánula de traqueotomía]
DOI:
https://doi.org/10.12957/reuerj.2019.43335Keywords:
Pediatric nursing, child, tracheostomy, familyAbstract
Objective: to describe the challenges faced by family members in providing home care for children with tracheostomy. Method: this qualitative, descriptive study, applied content analysis from the perspective of Collière's theoretical framework. Eight family members of children with tracheostomies, aged between 3 and 9 years, treated at a pediatric outpatient clinic in Rio de Janeiro city, were interviewed between January and May 2016. Results: the main challenges found were coping with the new situation, new care demands, difficulty acquiring material, and limitations on social life. To overcome the difficulties, family caregivers reinvent care strategies in order to preserve lives. Conclusion: behaviors that pose risks to these children’s health were identified, pointing to the need to equip families’ care practices so that they can maintain airways properly and safely at home.
RESUMO
Objetivo: descrever os desafios enfrentados por familiares para cuidar da criança com traqueostomia no domicílio. Método: pesquisa descritiva, qualitativa, desenvolvida através da análise de conteúdo, pela perspectiva do referencial teórico de Collière. Foram entrevistados oito familiares de crianças com traqueostomia, na faixa etária entre 3 e 9 anos acompanhadas em um ambulatório pediátrico no município do Rio de Janeiro, no período de janeiro a maio de 2016. Resultados: os desafios envolveram principalmente o enfrentamento da nova realidade, as novas demandas de cuidado, a dificuldade com a aquisição de materiais e a limitação no convívio social da criança. Para superar as dificuldades os familiares cuidadores reinventam as estratégias de cuidado a fim de preservar a vida. Conclusão: foram identificadas condutas que oferecem risco à saúde dessas crianças, apontando a necessidade de instrumentalizar as práticas dos familiares para a manutenção adequada e segura das vias aéreas no ambiente domiciliar.
RESUMEN
Objetivo: describir los desafíos enfrentados por familiares para cuidar al niño con traqueotomía, en el domicilio. Método: investigación descriptiva, cualitativa, desarrollada a través del análisis de contenido, desde la perspectiva del marco teórico de Collière. Se entrevistaron ocho familiares de niños con traqueotomía, con edad entre 3 y 9 años, cuyo seguimiento tuvo lugar en un ambulatorio pediátrico situado en el municipio de Río de Janeiro, de enero a mayo de 2016. Resultados: los desafíos involucraron principalmente el enfrentamiento de la nueva realidad, las nuevas demandas de cuidado, la dificultad en la adquisición de materiales y la limitación en la convivencia social del niño. Para superar las dificultades, los familiares cuidadores reinventan las estrategias de cuidado con fines de preservar la vida. Conclusión: se identificaron conductas que representan riesgos a la salud de estos niños, lo que señala la necesidad de instrumentalizar las prácticas de los familiares para el mantenimiento adecuado y seguro de las vías respiratorias en el entorno del hogar.
Downloads
Published
How to Cite
Issue
Section
License
When publishing in Revista Enfermagem UERJ, the authors declare that the work is their exclusive authorship and therefore assume full responsibility for its content.
Authors retain copyright to their article and agree to license their work using a Creative Commons Attribution International Public License (CC BY), thereby accepting the terms and conditions of this license (https://creativecommons.org/licenses/by/4.0/legalcode.en), which allows material created by the author to be distributed, copied and displayed by third parties. The original work must be cited and present a link to the article available on the website of the journal in which it was published.
The Copyright of the articles published in Revista Enfermagem UERJ belongs to their respective author(s), with the rights of first publication assigned to Revista Enfermagem UERJ, with the work simultaneously licensed under a Creative Commons License CC BY, which allows sharing of work with recognition of authorship and initial publication in this journal.
The authors grant Revista Enfermagem UERJ the right of first publication, to identify themselves as the original publisher of the work and grant the magazine a license of non-exclusive rights to use the work in the following ways:
- Sell and/or distribute the work in printed copies and/or electronic format;
- Distribute parts and/or the work as a whole with the aim of promoting the magazine through the internet and other digital and printed media;
- Record and playback work in any format, including digital media.
In line with the journal's policies, each published article will be assigned a Creative Commons Attribution (CC BY) license.