Gerontechnologies to Support Family Caregivers of Elderly Individuals with Alzheimer's Disease: a strategic action research study

Authors

DOI:

https://doi.org/10.12957/reuerj.2024.84101

Keywords:

Geriatrics, Aged, Alzheimer Disease, Caregivers, Technology

Abstract

Objective: to describe gerontechnologies suggested by undergraduate health students to assist family caregivers with the main challenges experienced in caring for elderly individuals with Alzheimer's disease. Method: a strategic action research study conducted with seven family caregivers of elderly people with Alzheimer's disease and 12 undergraduate students from a university in Rio Grande do Sul. Data were collected from the caregivers through semi-structured interviews. Meanwhile, two focus groups were held with the students. Data analysis was carried out using the technique of discursive textual analysis. Results: ten challenges emerged, corresponding to cognitive aspects, Activities of Daily Living, and issues related to family/caregiver/society. It was possible to describe ten categories of gerontechnologies for care in the form of products and/or processes/knowledge/strategies. Final Considerations: the identified gerontechnologies have the potential to assist families and caregivers in the care of elderly people with Alzheimer's disease.

Author Biographies

Silomar Ilha, Universidade Federal de Santa Maria

Nurse. PhD in Nursing. Professor at the Department of Health Sciences, Universidade Federal de Santa Maria. Palmeira das Missões, RS, Brazil.

Francine CasarinCasarin, Universidade Federal de Santa Maria

Nurse. Master in Health and Life Sciences. PhD Researcher in Nursing at the Postgraduate Program in Nursing, Universidade Federal de Santa Maria. Professor of the Nursing Program at Faculdade Integrada de Santa Maria. Santa Maria, RS, Brasil.

Betânia Huppes, Universidade Regional do Noroeste do Estado do Rio Grande do Sul

Nurse. Resident in Family Health at Fundação Municipal de Saúde de Santa Rosa and Universidade Regional do Noroeste do Estado do Rio Grande do Sul. Ijuí, RS, Brazil.

Daiane Porto Gautério-Abreu, Universidade Federal do Rio Grande

Nurse. PhD in Nursing. Professor at the School of Nursing, Universidade Federal do Rio Grande. Rio Grande, RS, Brazil.

Francisco Fernandes, Universidade Federal de Santa Maria

Nurse. Master in Health and Life Sciences. PhD Researcher in Nursing at the Postgraduate Program in Nursing, Universidade Federal de Santa Maria. Professor of the Nursing Technical Course at Sistema de Ensino Gaúcho. Santa Maria, RS, Brazil.

Oclaris Lopes Munhoz, Universidade Federal do Rio Grande

PhD in Nursing. Professor of the Nursing Program and the Postgraduate Program in Nursing, Universidade Federal do Rio Grande. Rio Grande, RS, Brazil.

References

Instituto brasileiro de geografia e estatística. Projeção da População. Rio de Janeiro: IBGE; 2018. [cited 2024 Feb 20]. Available from: https://agenciadenoticias.ibge.gov.br/agencia-sala-de-imprensa/2013-agencia-de-noticias/releases/21837-projecao-da-populacao-2018-numero-de-habitantes-do-pais-deve-parar-de-crescer-em-2047.

Gomide MESMA, Pereira CERSO, Santos TM, Lopes LMB, Soares CV, Wagner MCN, et al. Uma abordagem geral da demência: doença de alzheimer e demência vascular. REAMed. 2022 [cited 2024 Feb 20]; 18:e11047. DOI: https://doi.org/10.25248/reamed.e11047.2022.

World Health Organization. Public health response to dementia [Internet]. Geneva: World Health Organization; 2021 [cited 2023 Dec 10]. 137 p. Available from: https://www.who.int/publications/i/item/9789240033245.

Associação Brasileira de Alzheimer. O diagnóstico da doença de Alzheimer. Rio de Janeiro: ABRAz; 2023. [cited 2024 Feb 20]. Available from: https://abraz.org.br/o-diagnostico-da-doenca-de-alzheimer/.

Associação Brasileira de Alzheimer. Evolução da doença. Rio de Janeiro: ABRAz; 2024. [cited 2024 Feb 20]. Available from: https://abraz.org.br/sobre-alzheimer/evolucao-da-doenca/.

Merhy EE. Saúde: a cartografia do trabalho vivo 2Ş ed. São Paulo: Hucitec; 2005.

Ilha S, Santos SSC, Backes DS, Barros EJL, Pelzer MT, Gautério-Abreu DP. Gerontechnologies used by families/caregivers of elderly people with Alzheimers: contribution to complex care. Texto-Contexto Enferm. 2018 [cited 2024 Feb 20]; 27(4):e5210017. DOI: https://doi.org/10.1590/0104-07072018005210017.

Goodall G, André L, Taraldsen K, Serrano JA. Supporting identity and relationships amongst people with dementia through the use of technology: a qualitative interview study. Int J Qual Stud Health Well-being. 2021 [cited 2024 Feb 20]; 16(1):1920349. DOI: https://doi.org/10.1080/17482631.2021.1920349.

Palmdorf S, Stark AL, Nadolny S, Eliaß G, Karlheim C, Kreisel SH, et al. Technology-assisted home care for people with dementia and their relatives: scoping review. JMIR Aging. 2021 [cited 2024 Feb 20]; 20;4(1):e25307. DOI: https://doi.org/10.2196/25307.

Berridge C, Turner NR, Liu L, Karras SW, Chen A, Fredriksen-Goldsen K, et al. Advance planning for technology use in dementia care: development, design, and feasibility of a novel self-administered decision-making tool. JMIR Aging. 2022 [cited 2024 Feb 20]; 5(3):e39335. DOI: https://doi.org/10.2196/39335.

Karrer M, Hirt J, Zeller A, Saxer S. What hinders and facilitates the implementation of nurse-led interventions in dementia care? a scoping review. BMC Geriatrics. 2020 [cited 2024 Feb 20]; 20(1):127. DOI: https://doi.org/10.1186/s12877-020-01520-z.

Maia JC, Diniz JL, Sousa CR, Oliveira FGL, Evangelista BP, Coutinho JFV, et al. Interactive gerontechnology for fall prevention in the elderly: a descriptive study. Rev. bras. enferm. 2023 [cited 2024 Oct 09]; 76(2):e20220739. DOI: https://doi.org/10.1590/0034-7167-2022-0739pt.

Oliveira FGL, Rodrigues VES, Brito MES, Machado ALG. Construção de jogo educativo para estimulação cognitiva de pessoas idosas. Rev. bras. cienc. env. hum. 2022 [cited 2024 Oct 09]; 19(Supl.2):84-7. DOI: https://doi.org/10.29327/1108645.4-26.

Lucca DC, Hammerschmidt KSA, Girondi JBR, Fernandez DLR, Carvalho AA, Rosa SS, et al. Game of attitudes: Educational gerontotechnology for the elderly undergoing hemodialysis. Rev. bras. enferm. 2020 [cited 2024 Oct 09]; 73(Suppl 3):e20180694. DOI: http://dx.doi.org/10.1590/0034-7167-2018-0694.

Ministério da Saúde (Br). Agenda de Prioridades de Pesquisa do Ministério da Saúde - APPMS. Brasília: Ministério da Saúde; 2018 [cited 2024 Feb 20]. Available from: https://bvsms.saude.gov.br/bvs/publicacoes/agenda_prioridades_pesquisa_ms.pdf.

Franco MAS. Pedagogia da pesquisa-ação. Educação e Pesquisa. 2005 [cited 2024 Feb 20]; 31(3):483-502. DOI: https://doi.org/10.1590/S1517-97022005000300011.

Souza VR, Marziale MH, Silva GT, Nascimento PL. Translation and validation into Brazilian Portuguese and assessment of the COREQ checklist. Acta Paul Enferm. 2021 [cited 2024 Feb 20]; 34:eAPE02631. DOI: https://doi.org/10.37689/acta-ape/2021AO02631.

Moraes R, Galiazzi M. C. Análise textual discursiva. 3 ed. Ijuí: Editora Unijuí; 2020.

Casarin F, Huppes B, Ferreira CLL, Maziero BR, Ilha S. Alzheimers disease in the elderly person/family: difficulties experienced and (geronto)technology of interdisciplinary care. Wulfenia. 2021 [cited 2024 Feb 20]; 28(11):110-29. Available from: https://multidisciplinarywulfenia.org/auto/index.php/archive/part/28/11/1/?currentVol=28&currentissue=11.

Diniz JL, Sousa VF, Coutinho JFV, Araujo IL, Andrade RMC, Costa JS et al. Internet of things gerontechnology for fall prevention in older adults: an integrative review. Acta Paul Enferm. 2022 [cited 2024 Feb 20]; 35:eAPE003142. DOI: https://doi.org/10.37689/acta-ape/2022AR03142.

Rodrigues LN, Santos AS, Gomes PPS, Silva WCP, Chaves EMC. Construction and validation of an ed-ucational booklet on care for children with gastros-tomy. Rev. bras. enferm. 2020 [cited 2024 Feb 20]; 73(3):e20190108. DOI: https://doi.org/10.1590/0034-7167-2019-0108.

Lira GS, Freitas MRD, Chaves BFB, Brito ACM, Freitas FFQ. The use of educational technologies for the elderly: an integrative literature review. Rev. Enferm. Atual In Derme. 2021 [cited 2024 Feb 20]; 95(34):e-021054. Available from: https://revistaenfermagematual.com.br/index.php/revista/article/download/966/875/5077.

Martins HP, Quadros LCT. Music as a therapeutic agent in the treatment of Alzheimer's disease. Psicol. Pesqui. 2021 [cited 2024 Feb 20]; 15(1): e29081. DOI: http://dx.doi.org/10.34019/1982-1247.2021.v15.29081.

Menezes TMO, Andrade AMB, Freitas AVS, Moura HCGB, Freitas RA, Pires IB. Nursing reception and care in the family health strategy: perceptions of the elderly person. Rev Min Enferm. 2020 [cited 2024 Feb 20]; 24:1304. DOI: http://dx.doi.org/10.5935/1415-2762.20200041.

Bleibel M, Cheikh AE, Sadier NS, Abou-Abbas L. The effect of music therapy on cognitive functions in patients with Alzheimer’s disease: a systematic review of randomized controlled trials. Alz Res Therapy. 2023 [cited 2024 Feb 20]; 15(1):65. DOI: https://doi.org/10.1186/s13195-023-01214-9.

Shirsat A, Jha RK, Verma P. Music therapy in the treatment of dementia: a review article. Cureus. 2023 [cited 2024 Feb 20]; 15(3):e36954. DOI: https://doi.org/10.7759/cureus.36954.

Molteni V, Vaccaro R, Ballabio R, Ceppi L, Cantù M, Ardito RB, et al. Doll Therapy intervention reduces challenging behaviours of women with dementia living in nursing homes: results from a randomized single-blind controlled trial. J Clin Med. 2022 [cited 2024 Feb 20]; 11(21):6262. DOI: https://doi.org/10.3390/jcm11216262.

28. Martín-García A, Corregidor-Sánchez AI, Fernández-Moreno V, Alcántara-Porcuna V, Criado-Álvarez JJ. Effect of doll therapy in behavioral and psychological symptoms of dementia: a systematic review. Healthcare (Basel). 2022 [cited 2024 Feb 20]; 10(3):421. DOI: https://doi.org/10.3390/healthcare10030421.

Fisberg RM, Villar BS, Marchioni DML, Martini L. A. Inquéritos alimentares: métodos e bases científicas. 1. ed. São Paulo: Manole; 2005.

Daldato EV, Cavalcante FG. The place of family caregivers for older adults with Alzheimer’s disease: a literature review in Brazil and the United States. Ciênc. Saúde Colet. 2021 [cited 2024 Feb 20]; 26(1):147-57. DOI: https://doi.org/10.1590/1413-81232020261.38482020.

Alves MCA, Almeida MHM, Exner C, Toldrá RC, Batista MPP. Development and analysis of group intervention in occupational therapy for elderly with mild neurocognitive disorder. Cad. Bras.Terapia Ocupacional. 2020 [cited 2024 Feb 20]; 28(1):187-206. DOI: https://doi.org/10.4322/2526-8910.ctoAO1865.

Rodrigues VES, Oliveira FGL, Machado ALG, Beleza CMF, Pereira FGF. Construction and validation of care-educational gerontechnologies: integrative review. Rev bras geriatr gerontol. 2021 [cited 2024 Feb 20]; 24(4):e210144. DOI: https://doi.org/10.1590/1981-22562021024.210144.pt.

Mattos EBT, Oliveira JP, Novelli MMPC. The demands of care and self-care from the family caregiver’s of the elderly with dementia perspective. Rev bras geriatr gerontol. 2020 [cited 2024 Feb 20]; 23(3):e200189. DOI: https://doi.org/10.1590/1981-22562020023.200189.

Capi LBF, Tamiozo AS, Scalon MEM, Silveira VAS, Herculian JG, Rodrigues LCR, et al. Validação de material educativo para cuidadores de pacientes com Alzheimer. OLEL. 2024 [cited 2024 Feb 20]; 22(3):e3731. DOI: https://doi.org/10.55905/oelv22n3-103.

Soares IPP, Teixeira E, Souza AA, Leda ADO, Lima ADS, Victoria KD. Guia educativo de apoio a familiares e cuidadores de idosos com Alzheimer: validação de conteúdo. Rev. baiana enferm. 2021 [cited 2024 Feb 20]; 35:e42533. DOI: https://doi.org/10.18471/rbe.v35.42533.

Pappadà A, Chattat R, Chirico I, Valente M, Ottoboni G. Assistive technologies in dementia care: an updated analysis of the literature. Front. Psychol. 2021 [cited 2024 Feb 20]; 12:644587. DOI: https://doi.org/10.3389/fpsyg.2021.644587.

Published

2024-11-07

How to Cite

1.
Ilha S, Casarin F, Huppes B, Gautério-Abreu DP, Fernandes F, Munhoz OL. Gerontechnologies to Support Family Caregivers of Elderly Individuals with Alzheimer’s Disease: a strategic action research study. Rev. enferm. UERJ [Internet]. 2024 Nov. 7 [cited 2025 May 25];32(1):e84101. Available from: https://www.e-publicacoes.uerj.br/enfermagemuerj/article/view/84101

Issue

Section

Research Articles