Young people living with HIV: perceptions of healthcare follow-up in light of vulnerability concepts
DOI:
https://doi.org/10.12957/reuerj.2025.87192Keywords:
Health Services, Continuidade da Assistência ao Paciente, Health Vulnerability, HIV, Young AdultAbstract
Objective: to understand the perceptions of young people living with HIV regarding healthcare follow-up. Method: a qualitative study grounded in the Concepts of Vulnerability, conducted with 16 young people aged 20 to 24 years who were periodically followed in a specialized health service. Data collection took place between May and October 2022 through in-depth interviews, followed by lexical analysis using the IRaMuTeQ® software. The research protocol was approved by an Ethics Committee. Results: the findings shed light on the complex realities experienced by young people living with HIV, marked by vulnerabilities and stigmatization. They highlight the essential role of health services and support networks in coping with their condition—from diagnosis and initial support to continuous follow-up. Final considerations: the persistence of discrimination reinforces the need for health education as a means to promote health, self-care, and prevention.
References
1. Arantes. LMN, Pedroso AO, Menegueti MG, Gir E, Botelho EP, Silva ACOE, et al. factors associated with late diagnosis of Human Immunodeficiency Virus/Acquired Immunodeficiency Syndrome (HIV/AIDS) in a university hospital in Brazil: challenges to achieving the 2030 target. Viruses. 2023 [cited 2024 mar 15]; 15(10):2097. DOI: https://doi.org/10.3390/v15102097.
2. UNAIDS. O caminho que põe fim à AIDS: Relatório Global do UNAIDS 2023. Genebra: Programa Conjunto das Nações Unidas sobre HIV/AIDS; 2023 [cited 2024 feb 02]. Available from: https://brasil.un.org/sites/default/files/2023-07/JC3082_GAU2023-ExecSumm_v2_embargoed_PT_VF_Revisada-EA.pdf.
3. Ministério da Saúde (Br). Secretaria de Vigilância em Saúde. Departamento de Vigilância, Prevenção e Controle das Infecções Sexualmente Transmissíveis, do HIV/Aids e das Hepatites Virais. Boletim Epidemiológico HIV/AIDS. Brasília (DF): Ministério da Saúde; 2023 [cited 2024 feb 02]. Available from: https://www.gov.br/Aids/pt-br/central-de-conteudo/boletins-epidemiologicos/2023/hiv-Aids/boletim-epidemiologico-hiv-e-Aids-2023.pdf/view.
4. Ministério da Saúde (Br). Sexualmente Transmissíveis, do HIV/Aids e das Hepatites Virais. Boletim Epidemiológico HIV/AIDS. Brasília (DF): Ministério da Saúde; 2024 [cited 2025 sep 07]. Available from: https://www.gov.br/Aids/pt-br/central-de-conteudo/boletins-epidemiologicos/2024/boletim_hiv_Aids_2024e.pdf/@@download/file.
5. Olinover M, Hamama L. Adolescents during wartime: Vulnerability-based profiles. J Res Adolesc. 2025 [cited 2025 sep 08]; 35(2):e70041. DOI: https://doi.org/10.1111/jora.70041.
6. Cruz MLS, Darmont MQR, Monteiro, SS. HIV-related stigma among young people living with HIV transitioning to an adult clinic in a public hospital in Rio de Janeiro, Brazil. Cien Saúde Colet 2021 [cited 2024 feb 21]; 26(07):2653-62. DOI: https://doi.org/10.1590/1413-81232021267.07422021.
7. Ministério da Saúde (Br). Secretaria de Vigilância em Saúde. Aids / HIV. Brasília (DF): Ministério da Saúde; 2025 [cited 2025 sep 08]. Available from: https://www.gov.br/saude/pt-br/assuntos/saude-de-a-a-z/a/Aids-hiv.
8. Ayres JRCM, Calazans GJ, Filho HCS, França Júnior IF. Risco, vulnerabilidade e práticas de prevenção e promoção da saúde. In: Campos GWS, Minayo MCS, Akerman M, Drumond Júnior M, Carvalho YM. Tratado de saúde coletiva. Rio de Janeiro: Hucitec; 2006. p. 354-95.
9. Mann J, Tarantola DJM. AIDS in the world. New York: Oxford University Press; 1996.
10. Ayres JR. Vulnerability, Care, and integrality: conceptual reconstructions and current challenges for HIV/AIDS care policies and practices. Saúde Debate. 2022 [cited 2024 mar 03]; 46:196–206. DOI: https://doi.org/10.1590/0103-11042022E714.
11. Ayres JR. Vulnerabilidade, direitos humanos e cuidado: aportes conceituais. In: Barros S, Campos PFS, Fernandes JJS. Atenção à saúde de populações vulneráveis. Barueri: Manole; 2014.
12. Fernandes I, Bruns MAT. Systematic review of the national scientific literature about the history of HIV/Aids. Rev Bras Sex Hum. 2021 [cited 2024 mar 05]; 32(1):60-5. DOI: https://doi.org/10.35919/rbsh.v32i1.916.
13. Matos VC, Torres TS, Luz PM. Adherence to antiretroviral therapy among cisgender gay, bisexual and other men who have sex with men in Brazil: evaluating the role of HIV-related stigma dimensions. PLoS ONE. 2024 [cited 2025 sep 07]; 19(8):e0308443. DOI: https://doi.org/10.1371/journal.pone.0308443.
14. Fauk NK, Hawke K, Mwanri L, Ward PR. Stigma and discrimination towards people living with HIV in the context of families, communities, and healthcare settings: a qualitative study in Indonesia. Int J Environ Res Public Health. 2021 [cited 2024 mar 04]; 18(10):5424. DOI: https://doi.org/10.3390/ijerph18105424.
15. Minayo MCS, Costa AP. Fundamentos Teóricos das técnicas de investigação qualitativa. RLE. 2018 [cited 2024 feb 15]; 40:139-53. Available from: https://revistas.ulusofona.pt/index.php/rleducacao/article/view/6439.
16. Altman DG, Simera I, Hoey J, Moher D, Schulz K. EQUATOR: reporting guidelines for health research. Lancet. 2008 [cited 2024 feb 15]; 371(9619):1149–50. DOI: https://doi.org/10.1016/s0140-6736(08)60505-x.
17. Ratinaud P. IRAMUTEQ®: Interface de R pour les Analyses Multidimensionnelles de Textes et de Questionnaires - 0.7 alpha 2 [Site de Internet]. 2014 [cited 2024 jan 29]. Available from: http://www.IRAMUTEQ®.org.
18. Sousa YSO, Gondim SMG, Carias IA, Batista JS Machado DCM. The use of the IRAMUTEQ® software in the interview data analysis. Pesqui. prát. Psicossociais. 2020 [cited 2024 mar 04]; 15(2):e3283. Available from: http://pepsic.bvsalud.org/pdf/ppp/v15n2/15.pdf.
19. Souza MAR, Wall ML, Thuler ACMC, Lowen, IMV, Peres AM. The use of IRAMUTEQ® software for data analysis in qualitative research. Rev Esc Enferm USP. 2018 [cited 2024 mar 04]; 52:e03353. DOI: https://doi.org/10.1590/S1980-220X2017015003353.
20. Camargo BV, Justo AM. Tutorial para uso do software IRAMUTEQ® (Interface de R pour les Analyses Multidimensionnelles de Textes et de Questionnaires). Florianópolis (SC): Universidade Federal de Santa Catarina; 2021.
21. Bardin, L. Análise de conteúdo. São Paulo, SP: Edições 70, 2016.
22. Garcia EC, Costa IR, Oliveira RC, Silva CRL, Góis ARS, Abrão FMS. Social representations of adolescents about HIV/AIDS transmission in sexual relations: vulnerabilities and risks. Esc Anna Nery. 2022 [cited 2024 may 01];2 6:e20210083. DOI: https://doi.org/10.1590/2177-9465-EAN-2021-0083.
23. Pimentel GS, Ceccato MGB, Costa JO, Mendes JC, Bonolo PF, Silveira MR. Quality of life in individuals initiating antiretroviral therapy: a cohort study. Rev Saúde Pública 2020 [cited 2024 may 03]; 54:146. DOI: https://doi.org/10.11606/s1518-8787.2020054001920.
24. Du X, Zhang Q, Hao J, Gong X, Liu J, Chen J. Global trends in depression among patients living with HIV: a bibliometric analysis. Front Psychol. 2023 [cited 2024 may 03]; 14:1125300. DOI: https://doi.org/10.3389/fpsyg.2023.1125300.
25. Sanca AM, Motta MGC, Giugliani C, Rocha CMF, Riquinho DL. The daily life of people living with HIV in Bissau, Guinea-Bissau: perspectives, challenges and vulnerabilities. Esc Anna Nery 2023 [cited 2024 May 03]; 27:e20210507. DOI: https://doi.org/10.1590/2177-9465-EAN-2021-0507pt.
26. Muniz CG, Brito C. What does the diagnosis of HIV/AIDS represent after four decades of epidemic? Saúde debate. 2022 [cited 2024 may 05]; 46(135):1093–106. DOI: https://doi.org/10.1590/0103-1104202213510.
27. Ninnoni JP, Nsatimba F, Agyemang SO, Commey IT, Bennin L, Agyare E, et al. An exploratory qualitative study of the psychological effects of HIV diagnosis; the need for early involvement of mental health professionals to improve linkage to care. BMC Public Health 2023 [cited 2025 sep 08]; 23:2518. https://doi.org/10.1186/s12889-023-17449-y.
28. Whiteley LB, Olsen EM, Haubrick KK, Odoom E, Tarantino N, Brown LK. A review of interventions to enhance HIV medication adherence. Curr HIV/AIDS Rep. 2021 [cited 2024 jun 10]; 18(5):443-57. DOI: https://doi.org/10.1007/s11904-021-00573-y.
29. Diura-Vere O, Mokgatle MM, Oguntibeju OO. Sexual behaviour and attitudes towards safe sex of youth receiving antiretroviral care at public health facilities in Palapye District, Botswana. Int J Environ Res Public Health. 2023 [cited 2024 may 20]; 20(5):3790. DOI: https://doi.org/10.3390/ijerph20053790.
30. Duarte-Anselmi G, Leiva-Pinto E, Vanegas-López J, Thomas-Lange J Experiences and perceptions on sexuality, risk and STI/HIV prevention campaigns by university students. Designing a digital intervention. Ciênc saúde coletiva. 2022 [cited 2024 may 20]; 27(3):909–20. DOI: https://doi.org/10.1590/1413-81232022273.05372021.
31. Newman PA, Prabhu SM, Akkakanjanasupar P, Tepjan S. HIV and mental health among young people in low-resource contexts in Southeast Asia: a qualitative investigation. Glob Public Health. 2022 [cited 2024 may 20]; 17(7):1200-14. DOI: https://doi.org/10.1080/17441692.2021.1924822.
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Copyright (c) 2025 Beatriz Sousa Fonseca, Thamires Fernandes Cardoso da Silva Rodrigues, Guilherme Malaquias da Silva, Liane Alves de Sá, Camila Morais Garollo Piran, Rosangela Aparecida Pimenta, Marcela Demitto Furtado, Maria de Fátima Garcia Lopes Merino
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