The Adult Child with Down Syndrome (DS): Paternal Perceptions

Abstract

Considering the growing recognition of the father's (man's) role in family relationships and advancements in the quality of life and longevity of individuals with Down Syndrome (DS), this study aimed to understand parents' perception of their adult child with DS and the father-child relationship at this stage of life. Four fathers of adults with DS participated in this qualitative research, responding to a sociodemographic questionnaire and a semi-structured interview. Through thematic content analysis, the results were organized into three categories: The adult child with DS "like a big angel"; Proximity and involvement in the father-child relationship; and Dependency vs. Independence in the father-child relationship. The parents indicated difficulties in recognizing their children's adulthood due to a lack of perception of socioemotional and identity transformations that would identify this stage of life. The importance of proximity, involvement, and dedication as significant parts of the father-child relationship is emphasized, as well as the challenge of finding a balance between providing support and limiting the independence of the children. The relevance of studies and interventions with parents of adult children with DS is highlighted, providing spaces for support and reflection, as well as the construction of knowledge in this context.