Social representation of chronic kidney disease and implications for quality-of-life perception

Authors

DOI:

https://doi.org/10.12957/reuerj.2024.86341

Keywords:

Renal Insufficiency, Chronic, Quality of Life, Social Representation

Abstract

Objective: to analyze the social representation of chronic kidney disease among patients living with the condition and its implications for quality of life. Method: a descriptive, qualitative study guided by the Social Representation Theory, conducted in the nephrology unit of a university hospital in Rio de Janeiro between March and May 2024. Data collection involved a characterization form and semi-structured interviews. Data analysis was performed using spreadsheet software and content analysis through lexical techniques, supported by Iramuteq®. Results: twenty patients undergoing hemodialysis and conservative treatments participated. They highlighted the implications for daily life and quality of life, as well as the support systems that aid in coping with the diagnosis and treatment choices. Final considerations: the findings revealed not only the challenges arising from the diagnosis of an incurable chronic disease but also the strain of treatment and the impacts of disease chronicity.

Author Biographies

Thaís de Medeiros Oliveira, Universidade do Estado do Rio de Janeiro

Nurse, Master's student in the Graduate Program in Nursing at the Faculty of Nursing, State University of Rio de Janeiro. Rio de Janeiro, RJ, Brazil.

Sergio Corrêa Marques, Universidade do Estado do Rio de Janeiro

Assistant Professor, Department of Nursing Fundamentals, Faculty of Nursing, State University of Rio de Janeiro. Rio de Janeiro, RJ, Brazil.

Conflict of interests: Associate Editor of the UERJ Nursing Journal (Revista Enfermagem UERJ), without involvement in the evaluation process of this submission.

Felipe Kaezer dos Santos, Universidade do Estado do Rio de Janeiro

Assistant Professor, Department of Nursing Fundamentals, Faculty of Nursing, State University of Rio de Janeiro. Rio de Janeiro, RJ, Brazil.

Conflict of interests: Associate Editor of the UERJ Nursing Journal (Revista Enfermagem UERJ), without involvement in the evaluation process of this submission.

Luiz Carlos Moraes França, Centro Universitário Anhanguera de Niterói

Assistant Professor, Nursing Program, Anhanguera University Center of Niterói. Niterói, RJ. Brazil.

Thelma Spindola, Universidade do Estado do Rio de Janeiro

Assistant Professor, Department of Nursing Fundamentals, Faculty of Nursing, State University of Rio de Janeiro. Rio de Janeiro, RJ, Brazil.

Conflict of interests: Scientific Editor of the UERJ Nursing Journal (Revista Enfermagem UERJ), without involvement in the evaluation process of this submission.

Virginia Paiva Figueiredo Nogueira, Universidade do Estado do Rio de Janeiro

PhD. Postdoctoral researcher in the Graduate Program in Nursing at the Faculty of Nursing, State University of Rio de Janeiro. Rio de Janeiro, RJ, Brazil.

Denize Cristina de Oliveira, Universidade do Estado do Rio de Janeiro

Assistant Professor, Department of Nursing Fundamentals, Faculty of Nursing, State University of Rio de Janeiro. Rio de Janeiro, RJ, Brazil.

Conflict of interests: Member of the Editorial Board of the UERJ Nursing Journal (Revista Enfermagem UERJ), without involvement in the evaluation process of this submission.

References

Maciel OC, Santos EBA, Bermude BEBV, Ferreira LR, Tizzot EA, Mourão Júnior CA. A importância do médico de atenção primária no rastreamento e diagnóstico precoce da doença renal crônica. HSJ. 2019 [cited 2024 July 29]; 9(2):3-8. DOI: https://doi.org/10.21876/rcshci.v9i2.728.

Marinho AWGB, Penha AP, Silva MT, Galvão TF. Prevalência de doença renal crônica em adultos no Brasil: revisão sistemática da literatura. Cad saúde colet. 2017 [cited 2024 July 29]; 25(3):379–88. DOI: https://doi.org/10.1590/1414-462X201700030134.

Daugirdas JT, Blake PG, Ing, TS. Manual de Diálise. 5a. ed. Rio de Janeiro: Editora Médica e Científica LTDA, 2017.

Ribeiro WA, Jorge BO, Queiroz RS. Repercussions of hemodialise in the patient with chronic kidney disease: a literature review. Rev. Pró-UniverSUS. 2020 [cited 2024 July 29]; 11 (1): 88-97. Available from: https://editora.univassouras.edu.br/index.php/RPU/article/view/2297/1398.

The WHOQOL Group. The World Health Organization quality of life assessment (WHOQOL): position paper from the World Health Organization. Soc Sci Med. 1995 [cited 2024 July 29]; 41:1403-9. DOI: https://doi.org/10.1016/0277-9536(95)00112-k.

Vasconcelos NFO, Silva EG. O enfermeiro frente ao processo de resiliêcia do paciente em tratamento hemodialítico. Rev Inic Cient Ext. 2019 [cited 2024 July 29]; 2(4):228-34. Available from: https://api.semanticscholar.org/CorpusID:170972700.

Ribeiro WA, Evangelista DS, Júnior JCF, Sousa JGM. Encadeamentos da Doença Renal Crônica e o impacto na qualidade de vida de pacientes em hemodiálise. Rev. Pró-UniverSUS. 2020 [cited 2024 July 29]; 11(2):111-20. DOI: https://doi.org/10.21727/rpu.v11i2.2306.

Moscovici S. A representação social da psicanálise. Rio de Janeiro: Zahar, 1978.

Silva DPE, Oliveira DC, Marques SC, Hipólito RL, Costa TL, Machado YY. Representações sociais da qualidade de vida de jovens que vivem com HIV. Rev Bras Enferm. 2021 [cited 2024 July 30]; 74:e20200149. DOI: https://doi.org/10.1590/0034-7167-2020-0149.

Jodelet D. Representações sociais: um domínio em expansão. In: Jodelet D. (Org.). As representações sociais. Rio de Janeiro: EDUERJ, 2001. p. 17-44.

Sá CP. Representações sociais: o conceito e o estado atual da teoria. In: Spink MJ. O conhecimento no cotidiano: as representações na perspectiva da psicologia social. São Paulo: Brasiliense, 1993. p. 19-45.

Koenig H. Medicina, religião e saúde: O encontro da ciência e da espiritualidade. 1ªed. Porto Alegre: L&PM. 2012.

Reginato V. Diferenças e semelhanças entre espiritualidade e religião. In: Pereira FMT, Braghetta CC, Andrade PAS, Branco TP. Tratado de Espiritualidade na Área da Saúde. 1ªed. Rio de Janeiro: Atheneu, 2021. p. 11-28

Butyn G, Carvalho GM, Castro CJS, Silva GR, Arcaro G, Martins CM, et al. Avaliação da qualidade de vida do paciente com doença renal crônica em terapia renal substitutiva. Braz J Health Rev. 2021 [cited 2024 July 29]. 4(1):2785-98. DOI: https://doi.org/10.34119/bjhrv4n1-223.

Costa TB, Donaduzzi DSS, Rosanelli CLSP, Fossá CP, Schutz TC, Fettermann FA. Strategies and actions used by nurses against chronic renal patient sexuality: integrative review. Rev. Pesqui. (Univ. Fed. Estado Rio J., Online). 2021 [cited 2024 July 29]; 13:944–51. DOI: https://doi.org/10.9789/2175-5361.rpcfo.v13.9686.

Vasco MB. Estudo prospectivo para avaliação da função erétil em pacientes renais crônicos pré e pós-transplante renal [Tese de Doutorado]. São Paulo: Universidade Federal de São Paulo; 2023 [cited 2024 July 29]. Available from: https://repositorio.unifesp.br/items/9b2d3b6a-3464-4ef7-816c-f31290cc4a9b.

Oliveira LGFV, Freire LBV. Esperança de vida e transplante renal: aplicação da Escala de Herth em pacientes em lista de espera. Health Resid. J. 2024 [cited 2024 July 29]. 5(24):97-104. DOI: https://doi.org/10.51723/hrj.v5i24.999.

Vecchia RD, Ruiz T, Bocchi SCM, Corrente JE. Qualidade de vida na terceira idade: um conceito subjetivo. Rev. bras. epidemiol. 2005 [cited 2024 July 29]. 8(3):246-52. DOI: https://doi.org/10.1590/S1415-790X2005000300006.

Moura LM, Shimizu HE. Representações sociais de saúde-doença de conselheiros municipais de saúde. Physis. 2017 [cited 2024 July 29]. 27(1):103-25. doi: https://dx.doi.org/10.1590/S0103-73312017000100006.

Nascimento MEB, Mantovani MF, Oliveira D C. Care, disease and health: social representations among people on dialysis treatment. Texto context - enferm. 2018 [cited 2024 July 29]. 27(1):e3290016. DOI: https://dx.doi.org/10.1590/0104-07072018003290016.

Barata NERRC. Dyadic relationship and quality of life patients with chronic kidney disease. J Bras Nefrol. 2015 [cited 2024 July 29]; 37(3):315-22. DOI: https://dx.doi.org/10.5935/0101-2800.20150051.

Published

2024-12-19

How to Cite

1.
Oliveira T de M, Marques SC, Santos FK dos, França LCM, Spindola T, Nogueira VPF, et al. Social representation of chronic kidney disease and implications for quality-of-life perception. Rev. enferm. UERJ [Internet]. 2024 Dec. 19 [cited 2025 May 2];32(1):e86341. Available from: https://www.e-publicacoes.uerj.br/enfermagemuerj/article/view/86341

Issue

Section

Research Articles

Most read articles by the same author(s)

1 2 3 4 5 > >>